What Every Food Allergy Kiddo Needs to Know

What is your food allergy parenting style?  Some of us are pretty intense (myself included!!) taking a very watchful and hands-on approach to managing life with food allergies, while others are a little more laid-back.  From the clients I work with, to the Facebook groups I participate in as a food allergy mom,  I have seen it all from super conservative to extremely hands-off.  There is no right answer, and while it may be hard to grasp the "other way" the reality is we all need to find an approach to safely manage food allergies that works for us, and for our families.  And, this approach may ebb and flow depending on the season of food allergies you are in.  For me, I will always be Type A, about everything, but as we have grown into our food allergies over the last decade I have adjusted my intensity (although some would laugh at that statement!).

Your approach has to work for you, and others may not understand the how or the why behind your actions, but as long as you are working to keep your child safe and help them move closer to being able to manage their own allergies you are on the right track!

How you do it may differ from how I do it, but here is my list of the key things we need to be teaching our food allergy kiddos so one day they will be able to successfully self-manage their food allergies.  After you read my list, comment below if you have others you would add.

Epi Etiquette
Simply stated- take it everywhere you go, keep it on you, and keep it temperature controlled.  So many tragic food allergy stories start with the fact the the person did not have their epinephrine with them.

Label Reading 
Make sure they know how to read a label, how their allergens may appear on the label- which may be different if you are managing a non-top 8 allergen, and any other names their allergen may appear as on labels, for example botanical names.

It's Not Just the Food
Highlight non-food risks and places where their allergens could be found, for example in personal care products or pet foods.

Be Your Own Advocate
Help them develop the skills they need to be able to advocate for themselves.  Food allergy parents do a lot of the behind scenes work, but as they get older involve them in the meetings and conversations that you have so they can see how to structure a conversation about keeping it safe.

Cooking School
If you have food allergies there is some level of cooking you will need to do to keep it safe, so be sure your kiddo has some basic cooking skills in their back pocket.  We don't need to raise gourmet cooks, but a few basic skills will go along way to boosting their confidence and making sure they can cook for themselves when you are no longer there to prepare all those safe meals.  Check out my previous blog post with advice from Chef Laura Holland about getting your kids in the kitchen for some great ideas on inspiring your little chef.

Attitude is Everything
It has been proven time and time again that your attitude will shape your experience. While food allergies can be scary and limiting, help your kiddo find the joy in their situation and model positive behaviors while managing their food allergies.  For example, approach conversations about keeping it safe with a collaborative mindset and make the best of situations even if it is not exactly how you would want it.  If you missed my blog post a few weeks ago about food allergy silver linings give it a read and see if you can relate or get some additional perspective to shape your attitude about food allergies.

What else would you add to the list?

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Need help living your best life with food allergies?  I can help you Thrive On! 
Learn more about me and my company, Thrive On Consulting, which provides food allergy coaching and training.  You can also follow me on Facebook for tips to Thrive On with food allergies.

Check out #thriveonthursday - Every Thursday check out my Facebook page -I share a tip for thriving on with food allergies!

Food Allergy Anxiety and School: Tips to Thrive On

The new school year is upon us and for families with food allergies this can be an especially stressful time as we work to once again educate teachers, administrators and school staff about how to keep our children safe.  For me personally, this is one of the worst times of the year as I worry about how things will be managed. I can feel my anxiety rise as we get closer to the start of school.  I try to actively manage my anxiety so that my daughter enters school excited and feeling safe, but this is no easy task!

We are still early in our school years, but I know that managing food allergy anxiety- at this time of year and throughout the year- will be critical for our family to Thrive On with food allergies. 

To get some answers on managing food allergy anxiety I interviewed Dr. Jeanne Herzog of Summit Psychology Clinic.  Dr. Herzog is one of only a few psychologists nationwide who specializes in food allergy anxiety management.  She has worked with numerous patients with food allergies, presented on food allergy anxiety at the national level and was a featured webinar presenter on this topic for FARE.   She will also be speaking at the FARE Teen Summit later this year.

Dr. Herzog shares some wonderful insight into how to recognize and manage food allergy related anxiety for both parents and children, as well we strategies to discuss with your school to assist in managing anxiety.  I hope that you will learn as much as I did from Dr. Herzog!

What are signs that your child might be experiencing food allergy related anxiety at school?

Kids and teens with food allergy related anxiety can express it in obvious ways or in more discreet ways.

Obvious ways:

• Talking often about their worries
•  Asking often about safe foods and safety precautions
• Appearing scared or saying they're scared to go to school
• Calling home often from school with worries about their food allergies
• Crying, isolating, refusing to eat at school 

Less obvious ways:

• Increased complaints of stomach aches, headaches, other illnesses
• Excuses to isolate or choosing not to participate in school functions
• Unexplained academic or homework issues
• Peer relationships seem to change
• Moodiness, including sadness, anger, easily frustrated
• Change in eating habits, controlling behaviors

What can you do before school starts to alleviate some food allergy anxiety for your child?

If your child is attending the same school as the year before, the level of anxiety is likely to be lower, especially if the child felt safe last year.  However, even a new classroom or teacher or new classmates can increase that anxiety.  Summer is a time when a child may find comfort in being able to rely on parents to keep them safe.  It is best to, again, prepare a child to be an advocate for their own safety (age related) during school hours, when parents are not there, by rehearsing the emergency care plan and the plans provided for them at school.  It may help to meet with the new teacher in the new classroom and go over the emergency care plan and accommodations prior to school starting. 

If your child is attending a new school (moving, transitioning to middle school or high school, etc.) the change can be anxiety-provoking for both child and parent.  Parent and child should prepare together by making arrangements with the school regarding safety, the emergency care plan and any accommodations required. If there is any way to find out if any other child entering the school also has food allergies, this can reduce anxiety as there is truth to "safety in numbers." 

Kids (and parents) feel less anxious when they know that people care.  When those around them know and care about the dangers and follow rules to make the school safe, children living with food allergies feel safe, calm and more confident in their ability to keep themselves safe.  This also connects them to the school in a positive way, which contributes to a child's academic achievement and self-esteem. 

Any preparation that widens the circle of people in your child's life who care will be helpful in reducing anxiety.  

Is there anything in particular you should communicate to school staff regarding food allergy anxiety so they can assist in managing it throughout the year?

Much is communicated about physical health and safety, which is primary, but often little is talked about regarding how the food allergy makes a child "feel" emotionally, especially in terms of keeping safe at school.  I think administrators and teachers (as well as parents of kids without food allergies) are starting to do a good job in some schools to show that they take food allergy safety seriously and that they care.  But, many are unaware of how anxiety plays a part in the life of a child with food allergies (and the parents). 

If your child tends to be anxious about food allergies, it's best to share this with appropriate school staff so that they can watch for signs and together you can come up with strategies that can help your child.  School staff should be taught that each child with food allergies utilizes a small amount of anxiety in order to be diligent and cautious.  And, it is common for some children to become even more anxious when they cannot control the environment with diligence - for instance when others around them are eating food containing their allergen.  Children also commonly feel anxiety about how living with a food allergy affects their social world.  Sometimes they worry about being "left out." 

As a parent, what strategies can be employed to help manage our own anxiety around sending our child to school with a food allergy?

Managing anxiety so that parents and children continue to be diligent and cautious, but still allow themselves to enjoy life and relax, is crucial.  A parent who does a good job of managing anxiety in themselves sets a good example for the child.  There are many ways to manage anxiety.

Having a plan to manage anxiety is critical.  This should include accepting the challenge bravely and proactively working to educate your child and those who care for your child.  However, it is also critical to maintain balance and find identity outside of your life with food allergies.  It is also important to adopt strategies to allow you to calm your mind and your body when anxiety occurs.  Some examples include:

• Think about what you CAN do, instead of what you CAN'T do.
• Since anxiety is about fear of loss of control, rehearse the things over which you DO have control.
• Rehearse the things that are consistent and predictable in your environment.
• Remind yourself that every day we are working on normalizing an environment for those with food allergies.
• Name the people who "understand" and care about your allergy.
• Calm your body using: gentle touch, relaxation exercises, belly breathing (sit or lie comfortably, relax your shoulders and chest, inhale to the bottom of your lungs, which causes your diaphragm to push your belly out, exhale while pulling your belly back in, breathe slowly for 1-3 minutes while focusing  on each breath sound.)
• Get your body moving with a walk, activities, play and sports.
• Play, play, play!
• Ask for a hug from someone you trust.

When should you seek professional help for food allergy anxiety?

When your anxiety or your child's anxiety seems to be affecting physical health or is seriously interfering with functioning or happiness please seek professional help.  One can also seek the help of a professional before anxiety increases so that a child or parent can get coaching on how to manage emotions and situations as they arise. 

When you and your child have a relationship with a therapist who understands the possible anxiety and stressors of living with food allergies, that therapist can become a great resource for managing the emotions related to the various transitions in a child's life - school, friends, dating, adulthood, etc. 

Click here to learn more about Dr. Herzog.

Click here to view the FARE webinar featuring Dr. Herzog for more great information on managing food allergy anxiety.

If you find this post helpful learn more about Tami and her company, Thrive On Consulting, which helps families and individuals managing food allergies, and follow her on Facebook and Twitter

Why You Should Attend the Gluten Free Food Allergy Fest in Columbus, OH

In just a few days an amazing event is coming to Columbus, OH-  The Gluten Free Food AllergyFest.  The GFFA Fest, which will be held on April 30^th and May 1^st, is a must do if you are managing food allergies or Celiac Disease.   

I attended the GFFA Fest, hosted by Gluten Free and More, for the first time in 2015.  I learned so much and found so many great products- all catered towards those with food allergies and Celiac- I knew I would be adding it to my list of events to attend each year. 

Here are three great reasons you should plan to attend this weekend:

Gluten Free and Allergy Friendly Products Galore!

As you walk into the GFFA Fest, you will see aisle after aisle of products, vendors and companies all focused on helping those with Celiac and food allergies.  Get ready to sample great foods, discover new products and talk with companies that get it.  Some companies sample their foods and products and some even sell things.  Be sure to grab your complimentary sample bag when you enter the GFFA Fest and be prepared to leave with more than came with!

Education Sessions and Cooking Demos Throughout the Day

In between sampling tasty foods and finding your new favorite gluten-free products you can attend one of the many lectures or cooking demos offered at the Fest.  All day long chefs are cooking up allergy-friendly and gluten free bites in the demo kitchen.  You can attend a live cooking demo and then head to the lecture area to hear from medical, Celiac and food allergy experts on how to manage and thrive with food restrictions.

This year, I am honored to be representing my company, Thrive On Consulting and speaking on Traveling with Food Allergies and Celiac Disease.  My session will be the first of the day on both Saturday and Sunday.  I will be sharing tips and advice for traveling safely with food restrictions.  Come join me for an informative session just in time for planning that summer vacation!  And, one lucky attendee at each of my presentations will win a prize bag with great accessories for traveling with food allergies or Celiac generously donated by my partners at AllerMates, Allergy Apparel and I.C.O.E. Bracelets.  You don’t want to miss the chance to win these great prizes!

Connections, Community and Advice

When you have food allergies and Celiac Disease often times you feel like the outsider at an event- making special meal requests, brining your own safe foods, feeling unsure sometimes if the situation will be safe.  This is one event where you will feel at home and be surrounded by others who also have the same concerns and take the same precautions.  You will talk to people throughout the day- company representatives, chefs, fellow attendees- that all get it.  You will be part of the gluten free and food allergy community, and you will fit right in. 

There will also be people there to provide advice and support.  There is an authors booth where you can meet and talk to leading authors – and buy some of their wonderful books and cookbooks.   After my talk, I will be in the author booth to discuss any questions you may have about managing food allergies.  My friend, and fellow AllerCoach, Tiffany Monroe, who owns Ingredients for You,will also be at the GFFA Fest to talk all things food allergy- you can find her at the booth with Soodles Bake Shop, an allergy-friendly and gluten free bakery who will be serving up some delicious and safe samples.

Cannot wait to connect with you the GFFA Fest!

Safety Note: As a food allergy coach, a little advice to help you Thrive On at the Fest- if you are managing food allergies do still bring your emergency medications.  No matter how safe or comfortable you may feel, you should never leave home without your emergency medications.  Be sure to read labels and inquire about ingredients before sampling products as your allergens may be present in some of the products.   

Tami owns Thrive On Consulting, which helps families and individuals managing food allergies.  You can follow her on Facebook and Twitter

Food Allergies and Luck

It is March- shamrocks, leprechauns and wishes for good luck are everywhere.  But what does this have to do with food allergies?  I think it is a lesson in luck.  Luck is defined as, “success or failure apparently brought by chance rather than through one's own actions”.  One thing is certain, when it comes to food allergies you cannot leave your safety to luck.  Being thoughtful, prepared and taking intentional action will help you Thrive On.  This week my Thrive On 3 is all about steps you need to take to stay safe- don’t leave it to luck!

Carry 2 EpiPens® at All Times
No matter where you are going or what you are doing, if you have a food allergy you have to have your EpiPen® with you.  Severe reactions can escalate in minutes and being without your epinephrine could have dire consequences.  Don’t risk it- keep your emergency medications with you.

Last year, there were multiple times that I was scrolling through my Facebook feed and learned of yet another food allergy related death. As I read these stories with tears streaming down my face from sorrow for the families to fear about my own daughter’s safety, one thing frequently struck me in these stories- often the person did not have their epinephrine with them.

Yes, there are challenges to carrying around medicines, but at the end of the day I would rather have an inconvenience than an irreversible outcome.  There are a number of great carriers out there.  We use the AllerMates Allergy Medicine Case.  It fits two EpiPens®, our antihistamine and includes an ID card with contact information.  We have had the case for two years and it is still in great condition despite the fact that it is transported everywhere and passed off multiple times throughout the day at school to teachers, cafeteria staff, and car pool monitors.  Frio offers a great insulated bag for summer time heat when it is essential to keep your epinephrine temperature controlled.  Some other great carrier options are offered by Allergy Apparel and Epi Essentials (check these out for older girls- so stylish and functional!).  Also, if you register for the My EpiPen® Program through Mylan they will send you a free carrying case.

These are just a few of the many options available.  No matter how you choose to carry your emergency medications, a fancy carrier or a simple bag or pocket, the important thing is that you carry two EpiPens® – everywhere, all of the time.

Be Your Own Advocate
One of my favorite songs is Brave by Sarah Bereilles.  In it she sings, “Say what you wanna say, And let the words fall out, Honestly I wanna see you be brave.”  I love these lines and think this is so true when you have food allergies.  Sometimes you have to be brave to speak up and make a situation safe.  It can be uncomfortable, but you have to advocate for yourself or your child.  No one else will do it, or do it in the way that you can armed with information about your allergens, medicines and strategies for keeping you safe.

Don’t apologize for your allergies, speak the truth and inform people about what needs to happen, or not happen, to keep you safe.  Do it in a way that promotes collaboration and partnership.  Going in defensive, which admittedly is extremely difficult not to do sometimes, will ultimately work against you.  Yes, you may be frustrated, scared, and sometimes even mad that things are the way they are, but take the time to advocate in a positive and productive way.

Come prepared to discuss facts, offer alternative solutions and go in with the attitude that a positive outcome is possible.  Most importantly, do it- advocate for yourself or your child.  Say what you need to say- I want to see you be brave!

Educate and Build Your Village
We have all heard the African proverb “It takes a village to raise a child”.  I have found this to be true time and time again, and especially since our food allergy diagnosis.  As much as I like to think of myself as a “superwoman”, I have learned you cannot manage your food allergies in isolation.  You need support from your village!

I have also learned that people just don’t know what they don’t know.  I think back to before our diagnosis- I am sure I took unsafe foods to the park and didn’t wash my daughter’s hands after eating all of the time.  All things that are unthinkable to me now.  I do the right thing now because I am aware, because I am educated.  Part of building your village is making sure that people know what they need to know- about your allergies and how to keep you safe.

It has often been my experience that when I take the time to educate on food allergies people are more than willing to help make accommodations or be thoughtful about what foods they serve.  It can be as simple as a call to someone before an event to training your caregivers on how to keep your child safe while you are away (Need help with that? Check out my blog post for FAACT on Food Allergies and Caregivers).

Brainstorm who is in your village- family, friends, school personnel, babysitters, neighbors, restaurant staff, camp counselors….develop your list.  Once this list is defined make sure your village is aware and prepared to help you and your child Thrive On!

Luck is great, but your safety is not a game of chance.  To Thrive On with food allergies, you need to be prepared and have people around you who are also educated and ready to assist in managing your food allergies.  If you need help educating your village or developing ways to advocate for yourself let me know- I am here to help you Thrive On!

Product Disclaimer:
Thrive On Consulting does not sponsor or endorse the products listed.  Nor has Thrive On Consulting been paid to include these products.  Products mentioned here are provided as ideas and suggestions to help you Thrive On with food allergies.

If you find this post helpful learn more about Tami and her company, Thrive On Consulting, which helps families and individuals dealing with food allergies, and follow her on Facebook and Twitter